A Celiac Walks Into a Chipotle…

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When I was first diagnosed with Celiac Disease I was happy that I apparently had at least some options at Chipotle Mexican Grill.  After all, the only gluten containing food item on the menu are the flour tortillas.  Bowls and corn hard shell tacos are both viable gluten free options.  Yay, tasty food!

As I learned about Celiac disease, food preparation and my own symptoms I started re-thinking how I order at Chipotle.

The most well trained Chipotle employees will immediately wash their hands and change their gloves when you identify yourself as a Celiac Disease sufferer.  If they are well trained they will also follow you down the line to complete your order.  That minimizes cross contamination risks and means not every single person needs to wash hands and change gloves.

The question that I asked myself is… what good does it do if they wash their hands and change their gloves?  The only thing that really helps with is when they touch the bowl when they first pick it up or move it.  They’re still using the spoons and the same tubs of ingredients.

The next thing that I’ve heard is… ask them to change spoons.  Okay, another step forward.  There could be something stuck to the spoon that gets on the person’s hand or drops into your food.  We’re still left with possible prior cross contamination of food that’s on the line.

I’ve sat and watched the line and how they handle spoons and what not.  Spoons touch the flour tortillas and go back into the ingredients.  They also choke up on the spoons when they’re holding them so their hands are close to the serving end.  The bins are deep enough that the area they just touched goes deep into the bin.

The cheese and lettuce are served by hand.  The same hands handle flour tortillas.  It doesn’t matter if the person making your bowl just washed their hands and changed their gloves, the people who just handled lettuce and cheese for previous orders did not.

Let’s face it… even though there’s only a single gluten containing ingredient… gluten is getting into everything on the serving line.

I’m not saying this is a general food safety or sanitation issue.  It is not.  It’s a gluten cross contamination issue.

Can you still eat at Chipotle?  The answer for me, a Celiac [About Me], is yes.  Here’s how…

  1. I identify myself as someone with Celiac Disease at the beginning of the ordering line.  I do that purposefully, even though they may not know what that means (they may be more familiar with gluten allergy or gluten intolerance).  I wait for their reaction.  Using the word disease let’s them know this is a serious situation and it gives them a chance to absorb that even if they don’t understand what it is.  If need be I follow up with an explanation.
  2. The most well trained employees will immediately wash their hands and change their gloves.  If they do not do this, kindly ask them to, or… you may want to ask to talk with a manager at this point.  They may alert other workers to the fact that a gluten allergy is being prepared.  I know allergy isn’t technically correct, but practically speaking that doesn’t really matter.
  3. I inform the person making my bowl that I am extremely sensitive to gluten and I would like my bowl made from previously unused tubs of ingredients using clean utensils.  The best of the best will do this without being asked, but don’t assume that will happen.  Fresh bins of salsas, beans and other toppings are refrigerated under the line or kept warm in the back.  The only thing they may not have are fresh tubs of meat selections.  They do have reserved and covered tubs on the hot table, but it’s possible that they could be running behind and not have an fresh tub available.  You could either step out of line and wait for fresh meat to be ready or go vegetarian for the day.

In my opinion washing hands and changing gloves aren’t enough to make a safe meal.  Changing spoons is also mostly frivolous.  There is too much gluten flying around and cross contaminating food.

I’ve found Chipotle staff to be generally helpful, respectful and caring.  I do eat there even though I am very sensitive but ask them to wash their hands, change gloves and only serve me fresh ingredients from previously unused containers, using clean utensils.  They have always been willing to do this for me.

If you have an issue with explaining your situation or you feel uncomfortable about the way your food is being prepared, I’d suggest that you ask a manager to prepare your meal.

Going during slower times can help.  If you feel uncomfortable explaining all of this on the spot or want to make sure they know you’re coming just give the restaurant a call beforehand.

Also use Find Me Gluten Free to give a fair review of Chipotle and other restaurants so the rest of the gluten free community can learn from your experience.

As always be kind, thankful and reward good service by tipping and by sharing praises.

Visit Chipotle’s Website

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Is it safe to drink gluten-removed beers?

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Most “gluten-removed” beers are made using gluten containing ingredients like… barley.  During fermentation an enzyme is used that breaks down gluten.  The real issue is whether or not the things that are left (peptides) cause a negative reaction in those who (like me) have Celiac Disease.  Personally… I would love to see some of the bigger breweries that produce these beers, like Omission, band together to commission additional scientific research in this area, including a double blind study on the actual effects of drinking gluten removed beers on those suffer from Celiac Disease.

Gluten Free Watchdog (I’m a subscriber!)… has an excellent paper detailing this issue.  See: Is Barley-Based “Gluten-Removed” Beer Safe for People with Celiac Disease?

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Restaurant Fail… If they can’t make it Celiac Safe, they shouldn’t plate it

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I’m fresh from returning for an overall great trip to Seattle.  Look for a sizable trip report soon.  Also: Trip Reports tag.  I did want to tell you a quick story about a bad experience that I had in hopes that you’ll learn from my misfortune.

The primary reason we went to the Seattle area was a family function.  We flew from the Midwest to Seattle.  The family function had an associated luncheon with it.  Great… that’s always fun for a Celiac [About Me].

I called the restaurant a few days in advance and spoke with the Chef.  He was polite and respectful.  I asked him if he knew what Celiac Disease was and he said… not really, could I tell him about it.  I explained it in general and let him know that I’m very sensitive to even small amounts of gluten.

After chatting, he told me he didn’t feel comfortable providing food to me.  Surprising, since this was an actual Chef at what appeared to be a well-rated and moderately expensive restaurant.  Nevertheless, I would have rather heard this vs sweet nothings combined with sickness from gluten.  He suggested that I bring my own food in and they would plate it.  Good solution.  I asked him if I should just ask for a plate and he said that he would prefer that I give them the food for plating.  Ok.

The morning of the event I drove 25 miles in the wrong direction to get a gluten free breakfast at a highly rated Seattle based dedicated gluten free restaurant.  It was delicious.  The restaurant also prepared and packed up a lunch for me.  Yay!  I have no doubts that the lunch I received was gluten free and Celiac safe.

Upon arriving at the luncheon, I spoke with staff to let them know I was there and went over plating my food.  They immediately knew who I was and what my situation was.  They expected to see me and seemed to have it under control.  The last thing I said before giving them my food was… that whoever touched my food needed to wash their hands and change their gloves prior to doing so.

Upon receiving the food (a panini and a cup of soup), I knew that the food had been warmed up.  My assumption was that this had been done in a microwave (wrong).  Within a couple hours, I became certain that I had been poisoned by gluten.  I would say it was a small amount of cross contamination.

I emailed the manager about this.  He was apologetic and confused at what happened.  He said that “kitchen staff had washed their hands multiple times” preparing my food.  Wait.. preparing my food?  I was already told that the restaurant didn’t have the capacity to safely prepare my food.  Their task was to… put it on a plate.  Yet, they felt the need to “play chef” and contaminate my food.  Note that he (rightly) never disputed the gluten free status of the food I brought.

This leads me to a new rule that I’ve made up for myself… If they can’t make it then they shouldn’t plate it.  If a restaurant staff isn’t trained to understand basic food safety, including cross contamination, then they can pretty easily botch anything up.  If you’re in a similar situation to me, I’d say skip the eating altogether. If for whatever reason you feel that they must plate your food then I would suggest that you talk directly with a Chef or cook and walk through every single step that the food will take.

Lesson Learned.

I had a good discussion with the management and asked them to commit to discussing this issue among their team.  They agreed.

AlsoGluten Free Dining Out Cards (English and Spanish Edition) – Review

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Get This Book: Jennifer’s Way

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I typically try to read a book while on vacation.  We just got back from a trip to Seattle.  My choice for this trip was “Jennifer’s Way: My Journey with Celiac Disease–What Doctors Don’t Tell You and How You Can Learn to Live Again

All I can say is… wow.  Jennifer Esposito tells her compelling and sometimes heartbreaking storing of dealing with celiac disease for nearly her whole life.

If you have celiac disease or think you may have celiac disease, I think you should read this book.  Also… if you are in the healthcare industry or know someone who is a doctor or nurse… buy them this book.  Jennifer’s story shatters the myth that this is fad or minor disease.  This would also be a good title to share with family and friends to let them know just how serious this condition can be.

I don’t share the severity and length of Jennifer’s story or the severity of her symptoms, but I do see shadows of what she has gone through in my own experience.  I was essentially told I was crazy when I suggested to my general practitioner that I may have celiac disease.  Crazy.  Even after my GP received blood work results were a clear indication of celiac, I was told that “I might want to try a gluten free diet”.  No referral to Gastroenterologist or additional information.  Just… give it a shot and see what happens.  Had I not diagnosed myself through internet research and trial and error, I may have gone years and years without a diagnosis.  If it was up to my GP…. I would be trying to relax try and relieve the stress in my life that was causing my health problems.

My own situation has frustrated and confused me but I am utterly flabbergasted at Jennifer Esposito’s story.  I think you should get this book and share it with the people in your life.

Jennifer’s Way: My Journey with Celiac Disease–What Doctors Don’t Tell You and How You Can Learn to Live Again

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A Pill to Treat Celiac Disease? Be a Part of the Clinical Study

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The University of Chicago Medicine Celiac Disease Center plans to conduct a clinical study on a pill to treat Celiac Disease.

from the University of Chicago Celiac Disease Center…

A Pill to Treat Celiac Disease?

Now enrolling patients to a clinical study!
WHO?

You may be eligible for this study if:

  • You have celiac disease
  • You are 18 years of age or older
  • You have been on a gluten-free diet for at least one year
  • You are willing to eat bread containing gluten

WHAT?

Testing of Montelukast (a drug that has been approved by the FDA for treatment of asthma) for the treatment of Celiac Disease.
If enrolled, you will be given the drug or a placebo and asked to:

  • Travel to the Chicagoland area for 6 study visits over a 3 month period
  • Have multiple blood draws, endoscopy with biopsy and brushings, and provide stool samples
  • Answer some questions regarding your health

WHERE?

University of Chicago Medical Center
Subjects will be reimbursed up to $160.00 if all visits are completed and will receive parking vouchers. If you are interested, please contact:

Meaghan Peterson at 773-702-9743

www.curecelicdisease.org

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News: iCureCeliac Yields Surprising Findings

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iCureCeliac has released their first quarterly report.

About iCureCeliac:

iCureCeliac™ Reports First Quarter Progress – Celiac Disease Foundation

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iCureCeliac™ is an initiative by and for individuals living with celiac disease or gluten sensitivity who understand the need to contribute their ideas and their health data to fuel research. It is the only celiac disease patient registry that is nonprofit, patient-governed, and is part of a larger nationwide research network, called PCORnet. As part of PCORnet, iCureCeliac™ is able to contribute health data to many research efforts, while also providing celiac researchers access to data from people all over the world.

Launched in February 2016 by Celiac Disease Foundation, iCureCeliac™ has already contributed to two research studies. The first is to study the effects of a drug for refractory celiac disease. The second is to study arsenic exposure in the gluten-free diet. With more than 1,200 participants registered in its first four months, iCureCeliac™ is shaping the type of research that is most important to you – the patient.

Read the full report… iCureCeliac – The First Four Months

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Mayo Clinic Going Gluten Free: Essential Guide to Managing Celiac Disease

Mayo Clinic Going Gluten Free: Essential Guide to Managing Celiac Disease and Related Conditions

Mayo Clinic Going Gluten Free: Essential Guide to Managing Celiac Disease and Related Conditions by Joseph A Murray

This was my first read on Celiac Disease and Gluten related conditions.  I think it’s a great book, I learned a lot.  I picked up the Kindle Edition

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New Stanford Celiac Disease Resources Available

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Stanford medicine has released a set of tools, resources and links for those who must eat a gluten free diet because of a Celiac Disease diagnosis.

Included in the mix…

  • An explanation of the cause, symptoms, diagnostic tests and treatment for celiac disease
  • Information about which foods and additives contain gluten
  • Ideas for how to navigate the grocery store
  • Menu suggestions for gluten-free breakfasts, lunches, dinners and snacks
  • A handy, printable list (.pdf) of “green light,” “yellow light” and “red light” foods for those on a gluten-free diet
  • Links to other resources, including an explanation of U.S. Food and Drug Administration rules for “Gluten Free” food labels

See: New Stanford celiac disease resource offers help with gluten-free diets

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Celiac Disease: A Guide to Living with Gluten Intolerance

Celiac Disease: A Guide to Living with Gluten Intolerance

Celiac Disease: A Guide to Living with Gluten Intolerance 2nd Edition in paperback.  Also available on the Kindle Platform.

More Info

“An indispensable guide on how to safely alter your diet, manage your symptoms, and adjust to living gluten-free

Celiac disease is an autoimmune disorder characterized by an inability to digest gluten, a protein found in wheat and other grains that affects as many as 1 in 133 Americans. Written by a nurse, dietician, and clinical pharmacist,Celiac Disease, Second Edition provides everything you need to know to live a healthy wheat-free and gluten-free lifestyle including how to:

  • recognize and treat the most common symptoms
  • eat gluten-free and avoid hidden glutens, especially in common medications
  • prepare your kitchen and prevent cross-contamination
  • cook and bake gluten-free including delicious, easy-to-prepare recipes for breads, breakfasts, main courses, and desserts
  • dine out, travel, and entertain safely
  • tackle the emotional issues of having celiac disease
  • raise a child with celiac disease

and much more.

Containing the most up-to-date research and packed with tips, resources, and a one-week meal plan to make going gluten-free easy, Celiac Disease gives you everything you need to live fully and richly while maintaining a gluten-free lifestyle.”

 

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Celiac Disease (Newly Revised and Updated): A Hidden Epidemic

51rnmFDyuCL._SX325_BO1,204,203,200_Celiac Disease (Newly Revised and Updated): A Hidden Epidemic by Peter Green, MD and Rory Jones

About

The definitive book on celiac disease, one of the most common and underdiagnosed autoimmune diseases in America, available in paperback for the first time.

Do you suffer from gastrointestinal complaints, fatigue, headaches, joint pain, anemia, and/or itchy skin conditions? Have you consulted numerous doctors, and been prescribed drugs and diets that have only temporarily alleviated some symptoms? If so, you may have celiac disease, a hereditary autoimmune condition that affects nearly one in every hundred people—97 percent of whom remain undiagnosed and untreated.

The real answer to your medical problems may lie in this book. Dr. Peter H.R. Green, director of the Celiac Disease Center at Columbia University and internationally renowned expert on the disease, together with Rory Jones, an accomplished science writer who was diagnosed with the disease in 1998 and has been researching it ever since, have written this authoritative guide on how celiac disease is properly diagnosed, treated, and managed. The disease is triggered by gluten, a protein found in wheat, rye, and barley, which damages the lining of the small intestine so that it cannot properly absorb food. Without essential nutrients, the entire body begins to suffer. Complications from celiac disease can include infertility, depression, liver disease, other autoimmune diseases (such as type 1 diabetes and thyroid disease), and even cancer. This is a disease that you do not outgrow. At present, the only way to treat it is to follow a lifelong gluten-free diet.

This revised and updated edition contains the most current information on celiac disease, gluten intolerance, and gluten sensitivity. It examines the disease’s many manifestations and includes an entire section devoted to coping with the psychological aspects of living with a chronic illness and following a gluten-free diet. It also includes a guide to ingredients and safe grains, a selection of gluten-free manufacturers, and a list of national and international support groups.

Celiac Disease (Newly Revised and Updated): A Hidden Epidemic

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